MPS Society provides useful resources. We are always adding new information so come back regularly to see what we've posted.
Understanding MPS II Hunter disease
We know that being diagnosed with a rare disease is life-changing and you can struggle to come to terms with it. Therefore, we have...
Focus on Fabry: living with Fabry and coronavirus
First Fabry patient webinar focussing on Fabry and coronavirus is today at 4pm.
Be prepared: emergency information for admission to hospital
Emergency information for admission to hospital that you should have to hand.